One of the DVDs was about a fundraising musical concert. I was so impressed by the last part when some of the MPS children sang Amazing Graces on the stage. I feel bad that I wasn't go back to show my support because I am one of them. I want to share my experience and tell them don't give up easily, but I am not in Hong Kong and seldom to go back.
I want to post that video on my blog and share with everyone, but I don't know would it against the copyright.
Since I have mucopolysaccharidoses, I know how hard it is. I know my life will be short, but I don't really care. I just want everyone and the society will give the younger MPS children has a chance to use the medicine and to have the ERT treatment in order to have better quality and extend their life. I want to say in here that please help us, we just want everybody knows MPS.
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